Not my usual crafty post today I’m afraid folks.
The last month has been utterly rubbish. Being a chronic migraine sufferer, I rarely have a day without intense pain or mental and physical exhaustion and as much as I enjoy the arrival of Spring, the sun is not welcome for my poor head. Each day is a massive struggle just to get up and out of bed and I wait to see if the horrid feeling will turn into an attack.
My migraines last from 3-6 days with the interim days filled with exhaustion. I usually have 2-3 days a month (if I am lucky) where I feel ‘normal’. Brave face comes into play a lot.
G has been marvellous, bringing me chocolate when I need it (some migraineurs find they crave it during an attack) and sending me to bed when I look like I need to rest. He even sits in the dark eating his meals with me, speaking in his quiet voice because I can’t bear the light or sound. On Wednesday I sat in my house with sunglasses on, not trying to be like a celeb of course, but trying to find some way to function without having to slap an eye mask on and lay down.
This week he sent me this video which made me giggle but also made me feel like Gizmo.
Right now I still trying to work full-time, run my Etsy store and keep up with the blog (thank goodness for scheduling), friends and family. In my office, I sit with the blinds shut and lights off attempting to get through a whole day at the computer. My employers are fantastic and have made many changes to my working environment, but I can’t help but feel a lengthy period away from work will help to break the cycle. Medication is frustrating as I have to try anything for a 3 month period to test it’s effectiveness.
I’m lucky to have a great group of fellow migraine sufferers online who offer me a great deal of support. Daisy in particular, has recently started a blog of her migraine experiences which echo mine in many ways. If you want to understand a little of what she and I go through each month, please take time to read it here.
The biggest thing I’ve learnt over the last year, is that every migraine sufferer is different, and what works for one person, may not work for you.
I haven’t written this post for sympathy, but to share with you all that despite what some bloggers portray, life isn’t perfect all the time! I wrote this post to share my experience and some resources that have helped me in my migraine journey. I have found great comfort in knowing there are other people who understand and experience the same things as me. The links are below for those of you who may suffer or wish to find out more.
Here’s to a healthy May. I’ll try not be miserable I promise!
National Migraine Centre – My specialist clinic. Highly recommended for migraine and headache sufferers.
The Migraine Trust – The health and medical research charity for migraine in the United Kingdom. Great for advocacy and advice.
Migraine Monologues – Victoria writes a fantastic blog with huge support for sufferers, including the MM Book Club.
That M Word – Emily writes a fabulous migraine blog with humour.
Skulls and Ponies – Fran is a fellow sufferer who has given me a lot of support. She blogs about craft and her experiences with migraine and depression.
Migraine Memoirs – As mentioned above, Daisy’s new blog is a way for her to share her migraine experience with family, friends and colleagues to enable them to understand her condition.
Students Discover Migraine Gene – The latest research about genetic links to migraine. Sadly my Mum and all my cousins on her side suffer.